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Jeannine Kowal: Pushing the Limits
Having a child with Prader-Willi Syndrome can push you to do many things you never imagined yourself doing. Many have started eating healthier, exercising more, counting calories, cutting out foods...
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Rachel Hansen: Breaking Barriers
It’s no secret that FPWR is an organization that is recognized internationally. This doesn’t happen without the efforts of amazing parents around the world who choose to be proactive and spread...
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Elizabeth Roof: Leading the Way in Behavioral Intervention
Senior Research Specialist, Elizabeth Roof from the Vanderbilt Kennedy Center is well known and revered by many in the PWS community. While specializing in psychiatric and behavioral development in...
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Jennifer Bender: Tireless and driven
Whether you’ve just recently received your child’s diagnosis of PWS or not, we can all agree those first moments are devastating and overwhelming. We’ve all been in that moment where we just wanted to...
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Rachel Wevrick: Going beyond the call of duty
We are lucky to belong to a strong and cohesive PWS community that achieves great things! While a large part of our community is built on the determination and strength of families and friends of those...
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Cindy Thomson Knows No Limits!
Battling PWS entails pushing through many trials and tribulations. Smooth sailing is hardly ever the case when it comes to raising a child with PWS. However, some families are presented with more...
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Dana Capobianco is ALWAYS there when you need her!
The initial reaction to receiving any life-altering diagnosis is usually grief. It takes time to process the information, and as it begins to settle in, the life that was once planned no longer seems...
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Heather Osterman & Katie Larson – FPWR’s Dynamic Duo in the Windy City
Katie and Heather’s friendship was born at the 2012 FPWR Research Conference in Indianapolis. Both women, and their wonderful husbands, hit it off immediately and say they would have been fast friends...
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Meet Gwyn Spearman!
Gwyn and Ellie Gwyn’s daughter Ellie was the first baby of the New Year 2012 in Spartanburg County, South Carolina. She stayed in the NICU for 30 days, and was diagnosed with Prader-Willi syndrome...
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Angela Frazier Can’t Wait To See You In Austin!
Angela and JD Frazier When Angela Frazier’s son Joseph (4 years old) was diagnosed with Prader-Willi Syndrome at 2 months, she and her husband JD listened to the geneticist say that their son “would...
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